Trial Status: Closed
Principal Investigator: Marilyn Bradbury
Planned Recruitment End Date: 31 October 2022
What is the DoMore study?
The DoMore study aims to find new ways to help children and young people with long-term disabilities, who are unable to walk, to move more in their daily routines. The programme is being co-designed, by working in partnership with young people who use a wheelchair (aged 12-25), family members of young wheelchair users, professionals and experts. They are participating in a series of virtual workshops. An app is being built based on the work we did in the workshops.
Paralympian Hannah Dines, a trike racer and race runner with cerebral palsy is supporting the study. She said “I hope the DoMore study enables more people to be active if they want to be, and progresses the research behind why activity matters”.
Why is the DoMore study being done?
Evidence suggests long periods of sedentary time can increase the risk of poor health, for example obesity, heart disease and type II diabetes. Being sedentary means sitting or lying down whilst awake, and not using much energy. Reducing sedentary time can help to prevent poor health. Research shows that children with disabilities spend more time being sedentary than children who don’t have a disability. Currently, there are no evidence-based programmes to help young people with disabilities to reduce their sedentary time. This one will be the first of its kind.
What we’ve done so far
We have completed steps 1-3 and half of step 4 of the co-design so far. Step 1 focused on understanding the problem from the perspective of our wide range of participants. In step two, we used the information we collected in step one to discuss what we should aim to change in the app we are designing. From this, we identified 5 goals we wanted the programme to address. Step 3 focused on how we should go about making changes to reach the 5 goals. We produced a model to explain how the app works. Using the ideas from step 3, we decided what the app would include in step 4 . Currently, we are working on getting the app built. We will finish step 4 by looking at the first version of the app and asking our participants for feedback. It’s not possible to join the study at the moment. We will be opening a new study to test the app in the future. If you are interested in joining that study when it opens, please email firstname.lastname@example.org so we can get in touch with you in the future.
Who is involved?
The team includes:
- Marilyn Bradbury (Project lead),
- Dr Christine Burt and Priti Parmar, from Research and Innovation at Birmingham Community Healthcare NHS Foundation Trust,
- service users (including Nathan Giles and the West Midlands Clinical Research Network Young Persons Steering Group),
- Professor Joan Duda and Dr Sally Fenton from the School of Sport and Exercise at the University of Birmingham, Dr Sue Neilson from the School of Nursing, University of Birmingham, and Dr Elizabeth Croot from the School of Health and Related Research at the University of Sheffield,
- industry experts Clever Together, who hosted the crowdsourcing platforms and host this study website.