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Involving parents and staff in learning from child deaths

Trial Status: Open


Thank you for visiting our study webpage.
We hope you find all the information you need. If you would like more information or to talk to someone, our contact details are below.

We want to improve how parents are involved in the review of their child’s death

We need your help!

Who can help us?
We are looking for parents/carers whose child (age from 1 month to 18 years) has sadly died in hospital, hospice or with palliative care at home since the beginning of 2021

What can you help with?
We would love to hear your story
You can tell us in a chat (interview) between you and Jenna (the researcher) or in a group chat (focus group) with Jenna and other parents/carers like you

Why is this important?
New guidelines recommend involving parents/carers in the review of their child’s death.

We know that some places are doing this well and others are finding it difficult.

By listening to your experiences we can help everyone to involve parents/carers in a way that works for them.

In the short video below, Jenna Spry (researcher) and Gayle Routledge (parent) will tell you more about the study and how you can get involved. There are also links to written information leaflets at the bottom of the page.


If you would like an informal chat to see if this is right for you, or to let us know you are interested in taking part, you can get in touch with Jenna Spry by:

For more information please click the links to the information leaflets:

Parent information (links to external site)

Healthcare Professional information (links to external site)